He laughed under his breath because you thought that you could outrun sorrow
take your own advice
cause thunder and lightning gets you rain
run an airtight mission, a Cousteau expedition
find a diamond at the bottom of the drain.
When I was about six years old, my family went to Chicago to visit my grandmother and great aunts during our summer vacation. While there, we took a trip to the Museum of Science and Industry where I saw the celestial mechanics machine — a low cabinet with nine steel balls of varying size and weights that spit out of the top and spun around and around a smooth, white plastic vortex into the hole at the bottom and then spit back out to spin around and around and do it all over again and again as a representation of the planets of our solar system in their respective orbits.
“Why don’t they knock into each other?” I asked my mother.
“Because they represent the planets. If the balls bump into each other, the planets bump into each other,” she replied.
I was horrified. I was convinced that the fate of the universe hung in the balance in that museum display. I stood there hovering over it for ages, afraid to blink or look away for fear I might miss the coming apocalypse. Sure that Jupiter had it in for Mars or that Saturn would lose control and careen wildly into the Earth and end us all right there on a carpeted corner of that museum on Lake Michigan. Convinced that by watching the pot, it would never boil. That the simple power of my very gaze would fend off disaster if I could just stay there and watch forever. Of course, I was eventually pulled away from the display to go look at an old steam locomotive and tour the replica of a coal mine where my wise-cracking uncle made my mother laugh so hard she wet her pants, much to my father’s chagrin.
I didn’t forget that vortex, though. Didn’t forget the way gravity sucked everything downward into nothingness only to spit it all back out again to run the constant race back into the gaping maw of sure destruction at the bottom or how it left each piece to spin and whir while evading the others — avoiding contact that meant sure destruction. The idea was to know your place and keep it. Stay close but just far enough for self-preservation. To understand how your little steel ball affected the gravity of all other others around it as you tumbled into the void. To know that if your little ball was destroyed or knocked from the playing field, all the other pieces would lose their way. Their orbits would degrade, and they would eventually crash and burn and come apart as well. For me, the celestial mechanics machine has always been a metaphor for and a lesson in life, one learned at an early age and never far from my mind.
I’m forced to think about the celestial mechanics machine a lot lately as my Mom has gotten sicker. The long and the short of it is that her condition is terminal without serious intervention and soon. She developed atrial fibrillation back in 2004 and had an ablation done to treat it in 2005. It started back up in May, and she’s been on a lightning fast decline ever since. She was hospitalized in July, and brother and I went out to be with her. They have tried cardioverting her back into a normal sinus rhythm, but it won’t stick. She had a cardiac catheter two weeks ago that found that she is in full, systemic, and advanced heart failure with pulmonary hypertension. Both of her valves are shot, there’s fluid in her heart, and both atria are hardened and enlarged from the a-fib.
The most sickening part is that she got this horrible news alone. Neither brother nor I were there to help or support her because she didn’t tell us she was having the procedure done until it was too late for either of us to get out there. Part of her was in denial, and part of her was trying to protect us. And all of her was being stubborn. As frustrated as I am, I understand, though. Having us there just makes it too real. Either way, though, it only made things worse, because it meant we weren’t there to ask questions, get them answered, and head off the resulting delay in treatment at a time when every day counts. Over the past two weeks, she’s gotten much, much worse. She’s had to stop working. She can’t do anything. Her resting heart rate has been around 150 bpm and her blood pressure is through the roof. No meds seem to get a lasting handle on it. My brother flew out last Tuesday and is still with her. Together, we bulled her cardiology practice to put her back with her old doctor and then bulled him into seeing her on Thursday. He spent three hours with her and scheduled an esophageal echo-cadiogram yesterday morning. The echo found that she’s declined even further — flirting with the point of no return — in the past two weeks and that her atria are even more enlarged than previously thought. She’s in really bad shape. They admitted her immediately, and she’ll be in the hospital indefinitely. I’m flying out this weekend to relieve my brother so he can get back to Utah and start classes on Tuesday. I will be missing my first week of class to be with Mom. I might have to take the semester off if this gets much worse, but I don’t care. My family is my everything, and my Mom is the center of that universe. I love her, and I’m happy to be with her. I might not be able to do much more than sit next to her bed and read journal articles while she sleeps and play cards and work crossword puzzles together to keep her company while we wait to talk to doctors, but that’s what I’m going to do.
I am trying to be positive, and we’re fighting to get her the best care possible. She’s fighting now, too. And to say my brother has been anything short of amazing would be completely inaccurate. He’s blown me away with the way he’s taken charge of the situation. I’m endlessly grateful to him for picking up all the balls and running with them when I couldn’t. We don’t accept that a terminal condition means the end. Mom is still very much herself. Scared and sad, but herself. She’s up and talking and laughing and completely with it. She’s as mobile as she can be, although, being in the hospital inhibits that. And she’s finally getting the care she needs. She’s being monitored. She’s medicated. She’s got trained emergency staff right outside her door. She’s in good hands. They’re looking for answers, and I’m hoping we’re going to find them. I have to believe that my mother is going to get better. I can’t afford to lose another parent right now. I can’t see another ball bounced off the vortex only to not return again at the top of the chute. I’m fresh out of armageddons. She won’t run marathons, but just like I wanted to use my mind to control those steel balls and save the universe, I believe that I can will my mother into recovery. Of course, logic tells me that my powers are limited, but really — fuck logic.
That said, I have little tolerance for any bullshit at all right now. I am just impatient with anything I find to be a petty concern. If it’s not life and death, I can’t be assed to care. It makes me a terrible person, a bad friend, and overall not very good company. And so, my current hermitage. Dealing with Mom’s situation takes all of my energy. I couldn’t be less enthused about this coming semester. I can’t focus, and my heart’s not in anything. I’m tired and distracted all the time. I’m exhausted but can’t sleep. I fall asleep for a few hours and wake up ready to fight. Everything I eat just comes right back up. I am bracing for what might the inevitable impact, and the cumulative effect of the real possibility of losing Mom on top of losing Dad is just building up and taking its toll. I feel like I’ve hit the surface and gone limp as I sink to the bottom like a stone. Like all the neighboring balls are crashing into me. Like the ones who kept me in orbit — the ones with the gravity upon which I relied — have been scattered and lost and soon I will be, too. There’s nothing to hold me in place anymore. I’m degrading.
When I do get it together enough to be slightly social in person or online right now, it, quite honestly, is an act. I force myself to do it. Force myself to smile. Force myself to do a performance of myself. It takes every ounce of energy I have to communicate and connect. I’ve given up the phone, for the most part. Emails are getting harder and harder for me. I definitely don’t want to talk. I read a story last week where one of the main characters had his vocal cords severed. In the plot, it was supposed to be a punishment — an instrument of horror. For me, it sounded like the most beautiful gift in the world. I am obsessed with the idea. I crave it, really. To have my voice taken for me so I no longer have the onus to use it. So that no one would expect me to speak up. To say anything. To respond. To have any answers. To make insufferable small talk. To be a person. I could just sit mute and stare at my hands and contribute nothing. Be led around and just fade into the background and conserve my energy. No voice means no power. Means not making any sounds, and that appeals to me, because right now
I WANT TO SCREAM ALL THE GODDAMN TIME.